Skills for independence
Why do we encourage independence?
There are many reasons for encouraging independence:
- Defining ourselves: What we do helps us to identify who we are, our lives are made up of a series of events and experiences which shape our own and others perceptions of us.
- Sense of Achievement: When we complete a task or activity we gain a sense of achievement that helps us feel good about ourselves.
- Sense of Control: When we complete a task or activity we feel in control of our actions and daily life.
- Providing Choice: It allows us to choose what we do, when we do it and how we do it.
- Reducing Dependence: It reduces our reliance on others which makes it easier for carers and families to support us.
Brain injury and skills for independence
Promoting / teaching independence can sometimes be a slow, frustrating and difficult process. Encouraging independence relies on:
Consistency
completing tasks in the same way (i.e. following a checklist)
Timing
completing tasks at appropriate times (i.e. meal preparation at meal times)
Context
completing tasks in the right situation/environment (i.e. shaving in bathroom)
Patience- learning takes time
It can often seem easier to ‘do’ the task for the person as it tends to be quicker, however this only reinforces deficits and encourages dependence.
A person's abilities
Daily life activities
Daily living activities are those tasks and roles a person routinely performs throughout their day. Some examples include:
- Personal care tasks (e.g. showering, grooming, toileting and personal
hygiene) - Mobility – ‘getting around’ – including walking, road sense, orientation, using transport
- Meal and snack preparation
- Domestic tasks (i.e.laundry, house cleaning, home maintenance)
- Shopping
- Paying bills and budgeting
- Taking medication
- Using the telephone
- Dealing with emergencies
- Organising activities for the day/week/month
What physical and cognitive skills do you need for these activities?
All daily living activities require a combination of physical and cognitive skills. A person with a brain injury will often have a number of deficits which will impact on their ability to complete daily activities. Some examples of skills include:
Physical:
- Mobility
- Transfers
- Arm/Leg (movement, strength, coordination)
- Sitting balance
Cognitive:
- Memory
- Initiation
- Attention
- Problem solving
- Planning and organising
- Concentration
- Communication
- Motivation
- Self monitoring
- Behaviour
- Insight
Impact on daily living skills
Injury to a particular part of the brain can cause a person to have difficulty performing one or more of the skills they require for daily living activities.
Below is a list of common ways that skills required for daily living activities are affected by traumatic brain injury:
- Memory – difficulty remembering events, appointments, names, requests, telephone numbers, messages. i.e. not remembering home phone number.
- Planning and organising – difficulty planning activities, organising work areas, coordinating tasks or appointments and getting ready “on time”. i.e. always being late to appointments.
- Attention/Concentration – difficulty maintaining focus on tasks and completing tasks. i.e. not monitoring items cooking on stove.
- Physical abilities – muscle weakness and/or loss of coordination (arms, legs, trunk, head), spasticity/tone/contracture, difficulty walking and transferring. i.e. needs a wheelchair for mobility.
- Communication – may have slurred speech, word finding difficulties, decreased ability to understand words or express themselves appropriately. i.e. not able to ask for items or assistance when shopping.
- Energy - difficulty maintaining energy levels to complete tasks i.e. unable to walk distance to local shopping centre.
- Motivation – difficulty identifying and completing relevant tasks due to lack of interest or enthusiasm for the task. i.e. refusing to shower daily.
- Self monitoring – difficulty recognising when they are making mistakes or are inappropriate in their behaviour. i.e. repetitively doing the same task incorrectly.
- Behaviour management – difficulty monitoring/controlling their own behaviour including anger, inappropriate conversation and/or offensive behaviour. i.e. yelling at random people in shopping centre for no reason.
- Problem solving – difficulty identifying there is a problem and determining the best solution. i.e. catching wrong train and not getting off to try to find the correct train.
Tips and Tools
i) Teaching strategies
There are five common strategies you can use to help a person with a TBI to be more independent at home and in the community:
i) Teaching strategies
i) Teaching strategies
There are five common strategies you can use to help a person with a TBI to be more independent at home and in the community:
1. Demonstration
- Demonstrate/ model how you would perform the activity
- You may need to demonstrate a number of times so that the person understands
- Get the person to practice the actions or repeat the steps verbally to you
2. Instruction
- Try to use as many methods of instruction as possible (e.g. written checklists, photos/pictures, physical demonstration, voice recorded on ipad/phone)
- Instructions should be:
- Timely (given at the time the activity is being performed)
- Short (minimse extra words, gestures or ideas)
- Clear (simple language, pictures)
- Consistent (the same each time)
3. Routine
- Maintaining a set routine makes it easier to learn; Try to do tasks:
- At the same time each day/week (i.e. grocery shopping every Wednesday)
- In the same way (i.e. write shopping list on ipad every Tuesday evening)
4. Feedback
- To help someone stay motivated when working on a goal you need to provide feedback about their performance. Feedback should be:
- Honest and positive: Feedback needs to be accurate but should be phrased positively to encourage the person to keep trying.
- Specific: Examples of good/poor performance should be provided to assist the person to learn.
- Timely: Feedback should be provided as soon after the session as possible.
5. Environment
-
Enviroment is a vital part of any teaching. There are a number of things to consider:
- Appropriate environment: Activities should be performed in a suitable environment (i.e. self care activities in the bathroom)
- Quiet environment: Try to teach in a quiet environment with limited distractions (e.g. turn off radio/TV)
- Environmental Cues: Think about using the environment to cue behaviours (i.e. use alarm clock to wake someone up or a whiteboard to list “jobs for today”)
Example: Making a cup of tea:
- See the person in their own kitchen with items needed for making a cup of tea on the bench (Environment)
- Discuss with the person the steps required to make a cup of tea and write a list (Instructions) provide assistance to make list if required
- Run through the task using the list with the person present (Demonstration)
- Have the person complete the task following the same instructions (Routine)
- Provide guidance and prompting during the task and discuss any issues after completion (Feedback)
Remember learning a new skill takes time, so don’t give up after only 1-2 weeks, everyone will benefit if the person increases their independence.
ii) Managing fatigue
ii) Managing fatigue
ii) Managing fatigue
Plan activity levels
- Try to spread “heavy” activities over the day/week (i.e. physically demanding tasks such as vacuuming, over the day/week). This could mean that the person vacuums the house on one day and does the washing on another.
- Alternate between physical tasks and cognitive tasks. (i.e. mow the lawn then sit and watch TV).
- Take regular rest breaks and include in daily planning if necessary
Simplify the task
- Can the task be performed while sitting?
- Can parts of the task be completed at different times in the day? (eg make a pasta sauce in the morning and then cook pasta in the evening)
- Is there a different way of performing the task? (e.g. hanging clothes inside on a drying rack rather than on the line in the back yard)
- Can certain steps within a task be changed? (e.g. buying pre-cut vegetables rather than chopping up all the vegetables)
iii) Memory tips
Here are some suggestions you could make to clients to help them with memory difficulties:
iii) Memory tips
iii) Memory tips
Here are some suggestions you could make to clients to help them with memory difficulties:
Diaries - keep a written diary or electronic organiser for day to day activities (eg attend gym, meet friend for lunch, pay phone bill). Encourage the person to check their diary at least every morning or evening
Calendar - keep a big calendar in a place where it can be seen clearly (eg on a kitchen wall or near a phone). Write information next to the date and cross the days off as they pass. Make sure all the people in the household use the same calendar
Whiteboard - write important notes on a white board (use white board markers so it can be wiped clean). Make sure the board is in a position where it can be seen and used easily. Keep information tidy and organised
Checklists - make checklists of things to remember or do. Tick the items off so that you know you have done them.
Rehearsal - repeat silently or out loud the information to be remembered. If you don't remember or don't understand something, always ask questions.
Electronic devices - set an alarm clock or wrist watch to remind you to do a regular activity (eg to take medication or feed a pet).
Telephone note pad -write all phone messages on the same pad. Keep the pad next to the phone so messages can be written down immediately. Get into the habit of checking for messages when you come home. Cross off the messages when you have called them
Post-it notes - write yourself notes and put them in placed you can see them. Throw them away when you have completed the task.
Special places - designate a special place where you keep things like your handbag, wallet, keys, mobile, glasses and bills to pay. This may be a tray next to the phone, a cupboard or shelf in your room.
Telstra wake-up and reminder call service - This can be used if you are worried about forgetting important things
Dosette box - a box with compartments for different times of the day to help you to remember when and how much medication to take
Try to stay calm - sometimes worrying or becoming upset about being forgetful can make it more difficult to remember things
iv) Useful tools
There are lots of specific strategies in Toolkit B Promoting Independence, e.g.
iv) Useful tools
iv) Useful tools
There are lots of specific strategies in Toolkit B Promoting Independence, e.g.
11. Remembering information and messages
13. Managing time
15. Food and meals
Risks
otential risks and dangers associated with increased independence and with whom to discuss these risks.
Risks are often complex and can be difficult to identify alone. When considering risks all members of the persons team (i.e. family, carers, doctors, therapists, case managers) should be involved in discussions and planning to ensure risks are identified and managed effectively.
Potential risks and dangers
Some of the potential risks and dangers associated with increased independence are:
- Injury (i.e. falls when learning to mobilise)
- Failure (i.e. not achieving goal when starting a new activity)
- Regression (i.e. refusal to attempt new tasks or complete familiar tasks)
- Behaviour/Aggression (due to different perceptions of independence)
- Vulnerability (due to decreased supervision or monitoring)
- Self harm/suicide (due to poor achievement or increased stress)
Managing risks
The process for managing these risks can include:
Identifying risks
There is no single right way to do this. Some strategies are:
- Discuss possible risks with person
- Brainstorming at a staff meeting or case conference
- Brainstorming with family members
- Discussion with rehabilitation team
Analysing and evaluating risks
Asking questions such as:
- What is the likelihood of the risk occurring?
- What is the consequence?
- What factors affect the likelihood or consequence?
- Is the level of risk acceptable? Not acceptable?
Taking action to minimise the risk
For example:
- Avoiding the risk, eg, no longer undertake the activity
- Reducing the risk, eg, through changing how an activity is done